PNH Awareness

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This episode of Access Health is dedicated to an extremely rare disease called PNH-Paroxysmal Nocturnal Hemoglobinuria.  Join us as we visit with a world renowned Hematologist to discuss pnh awareness and to talk with two patients who share their journeys to diagnosis of this rare disease on this segment of Access Health!

  • Joe Boyd

    This was fine for people to hear because it is such a rare problem, and is many times misdiagnosed. But, it was not useful at all for someone who wants to know what treatment/treatments are available for the disease. Whether a person recognizes symptoms or has had a confirmed diagnosis, they are mainly interested in knowing about treatment. This program gave no clue in that direction…….from a PNH patient……..JB