April 15, 2015
Raising Pompe Disease Awareness
Helping Shave Years Off a Patient’s Diagnostic Journey
Dr. Barry Byrne, Medical Geneticist and Director of the University of Florida Powell Gene Therapy Center, along with a Pompe patient join Host Ereka Vetrini and our expert panelist to discuss this rare and life-threatening condition and current screening tests
Pompe Disease is a progressive neuromuscular disorder, and a form of muscular dystrophy. This “medical mystery” is a rare and potentially life-threatening disease that can present at any age.
Dr. Byrne will enlighten viewers about screenings tests and new options to better manage the disease that are giving hope to patients and doctors.
PROMOTED
In a heartfelt and candid announcement that took the online community by surprise, Hank Green, the beloved YouTube sensation and co-founder of VidCon, revealed his recent cancer diagnosis. He revealed that he has Hodgkin’s lymphoma. The news, shared through various social media platforms, sparked an outpouring of support and well-wishes from fans around the world. […]
PROMOTED
Did you know that what you eat can have a significant impact on your mood? Science has shown that certain foods have the power to uplift our spirits and promote feelings of happiness and well-being. This is great news because there can never be enough mood enhancers within our reach. So, if you’re looking to […]
PROMOTED
Living with Alzheimer’s disease can present numerous challenges, not only for the individuals diagnosed but also for their loved ones and caregivers. As the disease progresses, it can bring about personality and behavior changes that require special attention and care. For those wanting support, here’s how to manage changes brought by this disease and […]
Comments